bgracious
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| Introduction | I have an amazing husband & 2 beautiful children. Camila is 1 & Finnley is 3. We live in & love Tampa. As first time parents, we didn't have a clue something was wrong with Finn. He was missing milestones & had some medical concerns. Our pediatrician referred us to genetics & at 11 months we got our answer: Finn has Trisomy 9p & 9p24.3 deletion. What does this mean? The geneticist handed us something from 1979 & said good luck. There we were left with little reliable information & zero resources of where we could get help in the area or on-line. I googled like crazy for the months following Finn's diagnosis & found finding information on Finn's syndromes was difficult at best & finding resources in the Tampa area was difficult. We were fortunate to stumble upon websites and a few people that could share bits of information here & there, but I kept thinking there are more people out there like me looking for ways to be advocates for their children. We don't know exactly what Finn's future will look like, but we do know we are going to help Finn be the best Finn he can be. I am excited to share what we have learned in terms of resources & to share Finn's journey. |
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