My blogs

195 Roses

About me

Location	Charlottesville, VA, United States
Introduction	I am a mom to 4 kids. 3 of them have Cystic fibrosis. (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene causes the body to produce unusually thick, sticky mucus that: - clogs the lungs and leads to life-threatening lung infections - obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Statistics * About 1,000 new cases of cystic fibrosis are diagnosed each year * More than 80% of patients are diagnosed by the age of three * At least 40% of the CF patient population is age 18 or older * In 2005, the median age of survival was nearly 37 years Almost 60 years ago, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Location

Charlottesville, VA, United States

Introduction

I am a mom to 4 kids. 3 of them have Cystic fibrosis. (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene causes the body to produce unusually thick, sticky mucus that: - clogs the lungs and leads to life-threatening lung infections - obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Statistics * About 1,000 new cases of cystic fibrosis are diagnosed each year * More than 80% of patients are diagnosed by the age of three * At least 40% of the CF patient population is age 18 or older * In 2005, the median age of survival was nearly 37 years Almost 60 years ago, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.