Jonah's Just Begun
My blogs
| Introduction | Jonah’s Just Begun-Foundation to Cure Sanfilippo Inc. Is a family ran organization, JJB’s board of directors are all parents with Sanfilippo type C children. Our focus is on funding research for Sanfilippo Type C. With the help of our sister Sanfilippo organizations and our foundations professional medical peer review board we have set the stage for finding a cure for our kids. JJB has a team of researchers from around the world collaborating on different types of treatments for our kids. The initial steps for the first ever type C mouse model and Natural History study have been taken. Our group of parents has been very busy laying the ground work that will entice a drug company to take our potential treatments to clinical trial. Now all we have to do is keep our researchers funded. |
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