Location	United States
Introduction	We have 3 sons ages 15, 13, and 9. Our youngest is affected by Neurofibromatosis Type 1 (NF-1). He has a plexiform neurofibroma that extends over 50% of his body length (from the nerve roots at the base of his spine, in/around his left hip, surrounding his left thigh, and down to the bottom of his left tibia). He is a resilient kid that brings a smile wherever he goes. His older brothers are avid hockey players and love most any sport.

Location

United States

Introduction

We have 3 sons ages 15, 13, and 9. Our youngest is affected by Neurofibromatosis Type 1 (NF-1). He has a plexiform neurofibroma that extends over 50% of his body length (from the nerve roots at the base of his spine, in/around his left hip, surrounding his left thigh, and down to the bottom of his left tibia). He is a resilient kid that brings a smile wherever he goes. His older brothers are avid hockey players and love most any sport.