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Introduction	Noah was born on February 5, 2007 by emergency C-section (full term). At 5 weeks old he began having seizures but they were never caught until he was 19 months old. At 6 months old an MRI found a tiny Arachnoid Cyst on each temple and Partial Agenesis of the Corpus Callosum. At 19 months old (September 2008) Noah had a tonic clonic (grand mal) seizure that lasted 8 minutes while asleep. Since March 2009, Noah has seizures every week. He is on Phenobarbital (6 ml twice a day), Triliptal (3ml twice a day), Keppra (3.5ml twice a day), Vimpat (3ml twice a day) and Dilantin (currently being weaned off). We also give Diastat to stop the seizures but it rarely works.On June 17, 2010, after years of genetic testing, Noah was finally diagnosed with FOXG1 Syndrome (a congenetial variant of Retts). Noah is severely developmentally delayed. He can not sit independently very long, crawl, stand, or walk.

Introduction

Noah was born on February 5, 2007 by emergency C-section (full term). At 5 weeks old he began having seizures but they were never caught until he was 19 months old. At 6 months old an MRI found a tiny Arachnoid Cyst on each temple and Partial Agenesis of the Corpus Callosum. At 19 months old (September 2008) Noah had a tonic clonic (grand mal) seizure that lasted 8 minutes while asleep. Since March 2009, Noah has seizures every week. He is on Phenobarbital (6 ml twice a day), Triliptal (3ml twice a day), Keppra (3.5ml twice a day), Vimpat (3ml twice a day) and Dilantin (currently being weaned off). We also give Diastat to stop the seizures but it rarely works.On June 17, 2010, after years of genetic testing, Noah was finally diagnosed with FOXG1 Syndrome (a congenetial variant of Retts). Noah is severely developmentally delayed. He can not sit independently very long, crawl, stand, or walk.