Susan Q.Knittle-Hunter
My blogs
| Gender | Female |
|---|---|
| Industry | Education |
| Occupation | Retired Special Education Teacher |
| Location | Sequim, Washington, United States |
| Links | Audio Clip |
| Introduction | I have two variants of the very rare and debilitating hereditary disease called Periodic Paralysis. For years I was misdiagnosed and mistreated with medications that I did not need and that caused damage to me. I am now severely disabled and use a power wheelchair. I was not diagnosed until the age of 62, 13 years ago. I have degrees in Psychology and Special Education from the University of Utah and had to give up my careers as a teacher and case manager working with children and adults with disabilities. My husband and I are co-founders of an independent organization, the Periodic Paralysis Network. We have a website with a forum containing 5 distinct discussion/support groups and we have written and published the only books written about Periodic Paralysis. Our focus is on educational resources to build self-reliance and self-empowerment. Our approach to treatment focuses on the self-monitoring of vitals and the management of symptoms through all-natural methods. I spend my days researching, writing and offering support and education to others with Periodic Paralysis. |
| Interests | Spending time in the Forest, Genealogy, Writing, Computer Games, Slot Machines, Traveling, Knitting, Reading, Family, Alternative Spirituality, The Paranormal |
| Favorite movies | Thrillers, Paranormal, Anything to do with Christmas |
| Favorite music | Soft Rock, John Denver, Christmas |
| Favorite books | Medieval Hisorical Romance Novels, The Paranormal and Parapsychology |