FatherPOV
My blogs
| Gender | Male |
|---|---|
| Industry | Consulting |
| Occupation | Caregiver, Musician/Composer, Patient Advocacy, Logistics & Human Resource Management |
| Introduction | I am the father of a 2 year old boy with a very rare and life-threatening disease called Fanconi Anemia. This is a window into my thoughts, hopes, and fears as I go through life raising my son, advocating for his health, and my general point of view on things that are happening in my life. I hope you will find inspiration and thought provoking content inside. |
| Interests | Fanconi Anemia, Rare Disease, Music Composition, Film Scoring, Non-profit support, Pediatric Health Advocacy, Complex Medical Needs, Tracheostomy, Hearing Loss, Deaf, TEF, |