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Introduction	My daughter Jane was diagnosed with neurofibromatosis, type 1 (NF1) at age 6 months. NF is a genetic condition which can lead to multiple nerve tumors. The primary manifestation of Jane's NF is a large plexiform neurofibroma on the right side of her face, jaw, and neck. Jane is currently participating in her third clinical trial with an experimental drug in the hopes of controlling her tumor.Jane is an otherwise heathy young woman! She enjoys spending time with her big brother and sister and her many friends.I have been a runner all my life, but joined the NF Endurance team (part of the Children's Tumor Foundation) about a year after Jane's diagnosis. Since then I have run twenty-nine half- and twenty-two full marathons, and in doing so have raised over $300,000 for the Children's Tumor Foundation and other NF charities.

Introduction

My daughter Jane was diagnosed with neurofibromatosis, type 1 (NF1) at age 6 months. NF is a genetic condition which can lead to multiple nerve tumors. The primary manifestation of Jane's NF is a large plexiform neurofibroma on the right side of her face, jaw, and neck. Jane is currently participating in her third clinical trial with an experimental drug in the hopes of controlling her tumor.Jane is an otherwise heathy young woman! She enjoys spending time with her big brother and sister and her many friends.I have been a runner all my life, but joined the NF Endurance team (part of the Children's Tumor Foundation) about a year after Jane's diagnosis. Since then I have run twenty-nine half- and twenty-two full marathons, and in doing so have raised over $300,000 for the Children's Tumor Foundation and other NF charities.