An FPIES mom
My blogs
| Introduction | I am an FPIES mom. I am not a medical doctor. I am "just" a mom. I am a mom of a little boy with FPIES. I am developing this FPIES file cabinet, if you will, to pull together the resources and information I have pieced together in hopes to help other families. There is so little known about this illness but we, the parents of children diagnoised with FPIES, are living it. This is about moms helping moms. When I began this journey, I was like so many at the beginning - scared, alone, overwhelmed, lost. It was, in large part, other mom's who inspired and helped me. Once empowered, I began to pull from my own experiences, my nutrition background (with a degree in dietetics), and my countless hours of research into this diagnosis for my son. My references are: the FPIES studies, past and current; other related research and journal articles on allergy, immunology, genetics, digestion and gut health; Janice Vickerstaff Joneja PhD,RD; Dr.H.Jyonouchi; my own nutrition background (as a Registered Dietetic Technician)and related experiences; the many other FPIES moms I've "met" on this journey; and of course- most importantly, my son www.fpiesmudpies.blogspot.com |
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