About me

Location	Manchester, New Hampshire, United States
Introduction	We have four amazing children - Jamie (7), Clare (5), Simon (3), and Violet (1). Our second child, Clare, was born with a rare genetic condition, Williams syndrome, and severe congenital heart defects (pulmonary stenosis and aortic stenosis). To date, she has undergone one open heart surgery and six cardiac catheterizations to repair her cardiac defects and has also undergone a frenulectomy (tongue-tie release) and an angio-embolization of her radial artery to repair an A-V fistula and aneurysm.

Location

Manchester, New Hampshire, United States

Introduction

We have four amazing children - Jamie (7), Clare (5), Simon (3), and Violet (1). Our second child, Clare, was born with a rare genetic condition, Williams syndrome, and severe congenital heart defects (pulmonary stenosis and aortic stenosis). To date, she has undergone one open heart surgery and six cardiac catheterizations to repair her cardiac defects and has also undergone a frenulectomy (tongue-tie release) and an angio-embolization of her radial artery to repair an A-V fistula and aneurysm.