Shelly Moore (oregonmarfan)
Blogs I follow
| Gender | Female |
|---|---|
| Industry | Technology |
| Occupation | Tech Support |
| Location | Oregon, United States |
| Introduction | In 1994, my husband Daniel was diagnosed with Marfan Syndrome, one year after we were married. After many twists and turns of odd symptoms and a misdiagnosis of a related condition, I and several children from an earlier marriage were also diagnosed with Marfan's in the fall of 2011. The odds of having Marfan's is 1 in 5,000. The odds of TWO undiagnosed Marf's meeting & marrying is 1 in who knows how many... Yet, we found each other!! As we adjust to the diagnosis, our lives are now changed and will be taking a new direction. Follow us along as we see where this uncharted path takes us... |
| Favorite movies | Star Wars, Star Trek, MIB, Independence Day, Armageddon |
| Favorite music | Pop, Jazz, Christian |
| Favorite books | Dave Ramsey's Total Money Makeover |