Shelly Moore (oregonmarfan)
Blogs I follow
- Calico Skies
- Connective Tissue Disorders: My Journey
- Home - Conner's Marfan Syndrome Support Group Where Kids Support Kids
- Learning to Follow
- Marfan For Life
- Marfan Syndrome Awareness | Raising Marfan Syndrome awareness in the community
- Marfan-tastic Life
- Melissa Morris Update
- Musings of a Marfan Mom
- Musings of a Marfan Mom
- Texas Tweeties by Bob Zeller
| Gender | Female |
|---|---|
| Industry | Technology |
| Occupation | Tech Support |
| Location | Oregon, United States |
| Introduction | In 1994, my husband Daniel was diagnosed with Marfan Syndrome, one year after we were married. After many twists and turns of odd symptoms and a misdiagnosis of a related condition, I and several children from an earlier marriage were also diagnosed with Marfan's in the fall of 2011. The odds of having Marfan's is 1 in 5,000. The odds of TWO undiagnosed Marf's meeting & marrying is 1 in who knows how many... Yet, we found each other!! As we adjust to the diagnosis, our lives are now changed and will be taking a new direction. Follow us along as we see where this uncharted path takes us... |
| Favorite Movies | Star Wars, Star Trek, MIB, Independence Day, Armageddon |
| Favorite Music | Pop, Jazz, Christian |
| Favorite Books | Dave Ramsey's Total Money Makeover |