Kirsten Schultz

My blogs

About me

Gender Female
Location Wisconsin (WI), United States
Links Audio Clip
Introduction Hi there! My name is Kirsten. I'm a wife, guinea pig mom, sister, and aunt to a minion loving toddler and a nephew who was born with a critical congenital heart defect called TAPVR. I'm a bi/pansexual singer and (sometimes!) songwriter who taught herself to play the ukulele and the piano. I grew up in an abusive home and recently cut contact with my mother. I work as a administrative assistant in pediatrics with amazing doctors. I'm also going to school to get my masters degree in health care administration with a focus on navigation and advocacy. Oh, also I'm chronically ill and have been for most of my life. I fell ill with Systemic Juvenile Arthritis or Still's Disease in November of 1993. Since then, the diagnoses have just kept coming. I am now diagnosed with fibromyalgia, psoriasis, patellofemoral arthralgia in both knees, anemia, scoliosis, asthma, gluten intolerance, depression, anxiety, and post-traumatic stress disorder. I also have suspected dairy intolerance and Raynaud's phenomenon.
Interests Raising awareness of the various issues faced by young people with chronic & invisible illnesses, defining terms chronically ill people need to know, engaging patients in their care, figuring out how we can use technology for patient engagement or to improve the patient-provider relationship, discussion on medications, lab work, and other daily issues, presenting research on chronic illness, especially rheumatic diseases, discussing sexuality and intimacy in relationships despite illness, reviews of books and assistive devices, all the sarcasm, showing compassion and love to ourselves, transition to adulthood, feminism, equal rights, disability rights
Favorite Movies Jurassic World, Kingsman: The Secret Service, anything Monty Python, The Goonies, Rent, Young Frankenstein, the Harry Potter series, anything Batman
Favorite Music Rachel Platten, Miley Cyrus, Atmosphere, Beyonce, Michael Franti, Scott Bradlee, Nicki Minaj, Beyonce, the Decemberists, Gangstagrass, Hugh Laurie, Tegan & Sara, blues, hip hop, top 40
Favorite Books The Harry Potter series, The Fault in Our Stars, Sophie's World, The Catcher in the Wry, All Quiet on the Western Front, The Gun Seller, Ghost Soldiers of Gettysburg, Bossypants, When Doctors Don't Listen, The Reluctant Fundamentalist, Southern Lady Yankee Spy, Hot Cripple, The Somnambulist, The Atlantis Code, The Haunted Rectory, The Ultimate Guide to Sex and Disability, Primer on the Rheumatic Diseases, Partners in Healing, The Monster of Florence, The Demonologist: The Extraordinary Career of Ed and Lorraine Warren