OurfragileXLife
My blogs
| Gender | Female |
|---|---|
| Occupation | Special Needs Homeschooling Mom |
| Location | Caruthers , CA, United States |
| Introduction | Our family welcomes you to join us in our journey. Can't make any promises that this journey will be easy but it will be worth it. My name is Erika and I am the momma of 3 amazing children, Emmett(7) , Amaya (11 and my step-son Jj (18), and baby Amelia. Together with the love of my life Juan we are going through this roller coaster journey.. Emmett & Amaya both have a genetic condition called Fragile X Syndrome. Emmett is on the very affected side of Fragile X Syndrome he is medically consider to also have Intellectual Disability, Autism, and Epilepsy. Amaya is very high functioning and Fragile X Syndrome did not affect her to the same extent of Emmett. She does struggle with anxiety, and other medical things that come with Fragile X. Last year we decided to homeschool both Emmett and Amaya. Homeschooling two special needs has been a journey to say the least. Join us as we share how fun & difficult it can be to raise a child with autism & Fragile X Syndrome. & our homeschool life. |
| Interests | What is Fragile X Syndrome? Fragile X Syndrome | FXS Fragile X syndrome is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition. You can find more info about Fragile X at the link below. https://fragilex.org/understanding-fragile-x/fragile-x-syndrome/ |