Ruth
My blogs
| Introduction | Papers: "Do We Really Want This: LPA comes to terms with Genetic Testing" (Society of Disability Studies 1996); "The Continuum of Disability & Trait in the Age of Genetic Manipulation" (Ecumenical Forum on Human Genetic Enhancement 1998); "Pride & Progress" (co-author) Harvard Medical Alumni Bulletin Winter 1998; http://dl.dropbox.com/u/74002823/image2012-04-02-183144.pdf, http://dl.dropbox.com/u/74002823/image2012-04-02-183205.pdf, http://dl.dropbox.com/u/74002823/image2012-04-02-183220.pdf The big DNA chip hasn't happened yet, but now there's an experimental medication by injection (Biomarin - BMN111), probably drug trials in near future, that may help with the short arms and potentially life-threatening neuro/respiratory complications of most common type of dwarfism, but kids would also grow in height. Brave new world. Biggest kick for me this last year was co-preaching Access Sunday at my spiritual home http://oldsouth.org/sermon/2011-10-09 |
|---|---|
| Interests | Recreational support programs for families with dwarfism, specifically founding director of Camp CAYA, Disability and bioethics, I'm a past national VP and president of Little People of America, and was on boards of several other nonprofits. Currently member of Second Thoughts movement against legalization of assisted suicide and impact on people with disabilities http://www.second-thoughts.org/ |
| Favorite Movies | OK, not "Movies" but links to old Interviews etc. http://www.davidberreby.com/human_kinds_in_the_making__dwarves_41205.htm, http://www.pbs.org/newshour/bb/science/genes_4-03.html, http://home.comcast.net/~dkennedy56/dwarfism_ricker.html |