MONIKA
My blogs
| Gender | Female |
|---|---|
| Occupation | https://www.facebook.com/OurRareMoonBaby |
| Location | DAYTON, NV, United States |
| Links | Wishlist |
| Introduction | I am the mother of 3 Moons Lorelei Moon M. 2007, Isabella Moon M. 2010, and Annabeth Moon M 2011. My Annabeth was born with a rare chromosonal disease called Trisomy 9 Mosaicism. Not much is known about this disease because very few have it and currently she is the only one in the state of Nevada that does have it. It is not known how long she will live or her quality of life. She currently has one kidney, misplaced pupil, 50% deaf, large ventricles in her brain with a lot of extra fluid, a pfo in her heart and severe reflux with blood. She is 3 months and still has no control of her head or can lay on her tummy for tummy time. She can not lay flat on her back or she can possibly drown from her reflux. She does have some nerve damage but are unaware of how severe we have lots of doctor appointments to try and figure things out. We are trying to see as many doctors as we can because in the state of Nevada they do not treat children with disablities fairly they do not get health insurance or disability, they do not care for disabled children. So like Annabeth I will be fighting even if I have to take it to congress. I will do what it takes for my baby to survive. |
| Interests | OUTDOOR ACTIVITIES |