Amanda M
| Introduction | My niece, Katie, has biliary atresia (the leading indicator for pediatric liver transplants). The cause of this rare disease is unknown. There is no handbook on biliary atresia, no "what to expect" guide. For many families this is extremely uncharted territory. This blog is, in part, an effort to chart that territory, with a few other random essays mixed in. Many thanks to Tiffany B. for my blog's title, and to Mikaworks for my blog's banner. All the usual disclaimers apply - for medical information, ask your doctor, etc. |
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| Interests | biliary atresia, narrative therapy, asset based community development, music from Mali, organ donation |