Laura and Anthony Perfetti
My blogs
Blogs I follow
| Gender | Female |
|---|---|
| Location | Glen Cove, New York, United States |
| Links | Audio Clip |
| Introduction | We have 4 children ages 10,6,3 and 1 years old. Our 6 year old Julia "ladybug" was diagnosed with NF1 when she was 4 years old. Since that day our life changed in so many ways. We live a great life, we love each other and love being with each other. NF is like a cloud over our heads, always there, sometimes raining, sometimes pouring, sometimes just gray. |