Jen
My blogs
| Location | Wilmington, Delaware |
|---|---|
| Introduction | I am the mother of two beautiful boys Ryan (5)and Brayden (2). Both Ryan and Brayden were diagnosed in 2009 with Sanfilippo Syndrome (aka MPSIIIA). Sanfilippo Syndrome is a fatal disorder for which there is currently no cure and very little treatment options. This is our story and journey. |