Lyme Blogger
My blogs
| Location | Raleigh, North Carolina, United States |
|---|---|
| Introduction | In 2006, the Infectious Disease Society of America ("IDSA"), an "independent" medical association, released the Lyme disease guidelines. Patients with Chronic Lyme disease were shocked to see this group of doctors completely denying that Chronic Lyme disease even exists. The panel found that in no circumstances should patients be treated with more than 30 days of antibiotics, and most times less is sufficient. It did not acknowledge that Lyme disease can exist beyond the initial infection, and insisted on a positive Lyme test to show that a patient had been infected at all. This test has been found to be over 50% inaccurate. It turns out that nine out of the 13 board members have direct conflicts of interest, including being on the payrolls of pharmaceutical companies, holding patents to Lyme vaccines and diagnostic tests, and in some cases, even receiving money directly from insurance companies who do not want to pay for long-term antibiotics (oral and/or intravenous), one of the few, albeit debated, paths to a cure for many Chronic Lyme disease patients. |
| Interests | Raising awareness of Chronic Lyme disease. Working to overturn the unjust IDSA guidelines so victims can get correct diagnoses and appropriate treatment. Lyme disease is a very serious illness, with over a third of cases becoming chronic. It is spreading across the U.S. at a rate 7x faster than HIV and will infect approximately 300,000 people each year. |
| Favorite movies | Under Our Skin - amazing documentary on Lyme Disease. Oscar semi-finalist in 2010. |