Finding JOY in Landon's Journey
My blogs
| Introduction | This blog is dedicated to our sweet son, Landon. He has an undiagnosed neurodegenerative disease and has really been regressing the last few months. Help us help Landon by sharing his blog and finding other kids with his same disease. We are looking for an underlying diagnosis, this is what we know: -macrocephaly -cerebellar atrophy -cerebellar ataxia -dysphagia -motor neuron disease -obstructive & central sleep apnea -optic neuropathy -auditory neuropathy -hypotonia Born full term, healthy at birth! Uncomplicated pregnancy and delivery. First clue something wasn't "right" was Landon wouldn't sleep at night, he would cry for hours at a time. Global developmental delay with hypotonia until 18 months then started regressing quickly. We love our Landon so much and hope when we find a diagnosis there will be treatment options to stop the progression of his disease! Please contact me at findingjoyinlandonsjourney@gmail.com with any possible diagnosis. Thanks! |
|---|