My blogs

My Life as a Mom with CF

Blogs I follow

The Steens

Our Surrogate Story

Life after the Lap Band procedure

Confessions of a Cyster

Real Life

About me

Introduction	I am 39 years old with cystic fibrosis. For the CFers who may be interested, my FEV1 is 115%, my genotype is dF508/R117H, and I am pancreatic sufficient. The primary way CF impacts me is chronic sinusitis and repeated bronchitis and mild pneumonia. My sputum cultures show pseudomonas aeruginosa(PA). I have only been hospitalized twice. I have been on Kalydeco since February 2015. My husband, Greg, and I have two daughters: Lily, age 5, and Grace age 3. I started this blog to share our journey towards conceiving our first child, and to share the information we learned along the way in case it may help other women with CF. During our struggle with infertility, this blog was a wonderful way for me to connect with other women who were dealing with similar struggles. I now write this blog to share my life as a mom with CF! It has been an amazing journey!

Introduction

I am 39 years old with cystic fibrosis. For the CFers who may be interested, my FEV1 is 115%, my genotype is dF508/R117H, and I am pancreatic sufficient. The primary way CF impacts me is chronic sinusitis and repeated bronchitis and mild pneumonia. My sputum cultures show pseudomonas aeruginosa(PA). I have only been hospitalized twice. I have been on Kalydeco since February 2015.

My husband, Greg, and I have two daughters: Lily, age 5, and Grace age 3. I started this blog to share our journey towards conceiving our first child, and to share the information we learned along the way in case it may help other women with CF. During our struggle with infertility, this blog was a wonderful way for me to connect with other women who were dealing with similar struggles.

I now write this blog to share my life as a mom with CF! It has been an amazing journey!