My blogs

Our Family & Congenital Myasthenic Syndrome

About me

Introduction	I live in a house of men. My husband and I have two boys. We laugh about 95% of the time mostly because we use humor as a defense mechanism. I created this blog in order to communicate with the outside world since many days it seems impossible to have an uninterrupted, adult conversation anyway. In August of 2011 our youngest son was diagnosed with a neuro-muscular transmission disease called Congenital Myasthenic Syndrome. Since then our daily life has changed significantly. We aren't exactly sure how this story will unfold so for now we are just focusing on each week. Like every family, we have our good days and our bad days. We try our best to focus on the small victories. We are blessed to have our faith in God, each other and our good health.

Introduction

I live in a house of men. My husband and I have two boys. We laugh about 95% of the time mostly because we use humor as a defense mechanism. I created this blog in order to communicate with the outside world since many days it seems impossible to have an uninterrupted, adult conversation anyway. In August of 2011 our youngest son was diagnosed with a neuro-muscular transmission disease called Congenital Myasthenic Syndrome. Since then our daily life has changed significantly. We aren't exactly sure how this story will unfold so for now we are just focusing on each week. Like every family, we have our good days and our bad days. We try our best to focus on the small victories. We are blessed to have our faith in God, each other and our good health.