My blogs

Exploring Holland

About me

Location	Washington, DC, United States
Introduction	What can we say...boy meets girl. We fall in love. Marry. 2 kids. We had the wonderful experience of living in London. Then, in the spring of 2008 both of our kids were diagnosed with MPS III A, otherwise known as Sanfilippo Syndrome. It is a fatal genetic disorder. We moved back to the US in summer 2008. We now call Northern Virginia home. We filled our days enjoying the little things and making memories. Waverly died on November 18, 2015 just 3 days after she turned twelve. Oliver died on December 5, 2018, just 25 days before his twelfth birthday.This is our journey.

Location

Washington, DC, United States

Introduction

What can we say...boy meets girl. We fall in love. Marry. 2 kids. We had the wonderful experience of living in London. Then, in the spring of 2008 both of our kids were diagnosed with MPS III A, otherwise known as Sanfilippo Syndrome. It is a fatal genetic disorder. We moved back to the US in summer 2008. We now call Northern Virginia home. We filled our days enjoying the little things and making memories. Waverly died on November 18, 2015 just 3 days after she turned twelve. Oliver died on December 5, 2018, just 25 days before his twelfth birthday.This is our journey.