Nadia Mariam's Hrhs Journey
My blogs
| Gender | Female |
|---|---|
| Location | nashville, tn, United States |
| Links | Audio Clip |
| Introduction | I have debated and debated whether I should do a Blog . I look at other's and enjoy looking at them so much, but have wondered if I should commit myself to trying to keep up on this blog. I hope this will be a good way to keep family and friends, near and far, updated on what is happening in our family. Tommy and I have been married for wonderful six years. We have a Beautiful 5 year old son named Justin . When I was about 20 weeks along we got the devastating news that changed our lives for good! Our precious Baby Girl Nadia has a serious heart condition called Hypo plastic Right Heart Syndrome which means that the right ventricle of the baby’s heart was exceedingly smaller than the left.. And she will require a serious of 3 open heart surgeries to save her life . She was born May 5th 2011 and had the BT shut at 5 days old and at 6 month her Glenn. She still has to have one and hopefully last big open heart surgery ( Fontan) which her doctor thinks will be around May of 2012 .Nadia is our little Hero she lifts up your spirits and brightens each and evert day with her beautiful smile. This is Nadia's story from the day we learned of Nadia's diagnosis until now. |