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Introduction I am hoping to share our family story with others who are living life with a special needs child. I have 2 children who have a genetic heart condition--Tetralogy of Fallot. Both have had heart surgery. In addition, my daughter has Down syndrome and a diagnosis of Infantile Spasms (seizures). Despite all the challenges we have gone through, our lives are lived fully and we feel blessed. I want to share the joys and the challenges we face with others.