AydenAva
My blogs
Blogs I follow
| Gender | Male |
|---|---|
| Location | Buffalo |
| Introduction | I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching |
| Interests | Jammin on my guitar with daddy,pretending to be spiderman,wrestling my daddy. |
| Favorite movies | Spiderman,Monster House,Transformers,Power Rangers,Toy Story,Tom & Jerry |
| Favorite music | Rascale Flatts,Foo Fighters,Taylor Swift |
| Favorite books | Are you my mommy,House that Jack built,My baby sisters a little monster. |