fshfriends
My blogs
Gender | Female |
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Industry | Non-Profit |
Occupation | Registered Nurse |
Location | Kirkland, Washington, United States |
Introduction | Mother of 4 children, one of which has Facioscapulohumeral Muscular Dystrophy, or FSH. Our family founded Pacific Northwest Friends of FSH Research in 2004 in order to help fund FSH research. |
Interests | Exploring new ways to raise the public's awareness of Facioscapulohumeral Muscular Dystrophy & to raise the funds necessary to stimulate & support new FSHD research. |