Stacey Ashlund
My blogs
| Industry | Technology |
|---|---|
| Occupation | Activist, Advocate, Community-builder, Educator, and Fundraiser |
| Location | California, United States |
| Introduction | I blog about Usher Syndrome - Usher syndrome type 1F in particular. I have a teenaged son w/ Usher 1f and this is my blog to help him always WIN at having Usher syndrome. We cannot make it go away - but he can, and will, WIN at life - no matter what Usher brings. |
| Interests | Fundraising for medical research into treatments for the blindness caused by Usher syndrome. Raising awareness about Usher syndrome. |
| Favorite books | Not Fade Away, by Rebecca Alexander |