My blogs

Blogs I follow

Gender	Female
Location	Utah, United States
Introduction	Diagnosed ACM/EDS/TC/HYDROCEPHALUS/SUBCRANEAL INSTABILITY. Two decompression surgeries, second was a full sinus, csf leakage on both, viral meningitis,shunt placement surgery, cranial placement surgery, 11 shunt revisions, staff meningitis, TC surgery, awaiting shunt reintronduction surgery. Glad to be alive.
Interests	My family(my husband Rob, and our four children Tyler 19, Chace 16, Samuel 13, Sarah 13. Spreading knowledge, support, information, and building awareness of Arnold Chiari Malformation,Ehlor Danos Sydrome, and related dishorders through out Utah and surrounding areas.