My blogs

About me

Gender Female
Location United States
Introduction I'm a JA'er from way back this year I will celebrate my 43 anniversary (dx'd at 2, you do the math). I'm on my 97th rheumatologist, about my 5000th week of PT and my 8th surgery in 8 years. I'm on Actemra and my RA is controlled the best it has been in 8 years, and yet its still light years away from remission. Fighting RA is my full time job without benefits and lousy hours. The rest of my time I spend being a wife to my wonderful husband of 20 years (yes, some spouse's do stay) and a mom to my 12 year old daughter with EDS (yes, even JRA'ers can have kids).