My blogs

About me

Location United States
Introduction I'm a JRA'er from way back, this year I will celebrate my 44th anniversary (dx'd at 2, you do the math). I'm on my 97th rheumatologist, about my 5000th week of PT and my 9th surgery in 7 years. I'm on Actemra and my RA is under control for the first time in 9 years.and yet it's still light years away from remission. Fighting RA is my full time job without benefits and lousy hours. The rest of my time I spend being a wife to my wonderful husband of 20 years and a mom to my 13 year old daughter with EDS.