Debbie
My blogs
Blogs I follow
| Gender | Female |
|---|---|
| Industry | Education |
| Occupation | Special Education annd Elementary Ed |
| Location | South US, United States |
| Introduction | My husband and I have four wonderful sons! Two of which have a rare genetic disease called Severe Combined Immunio Deficiency Syndrome - (SCIDS) or as most people understand it as "the bubble boy" syndrome. I am blogging to shed light on this subject. Back when my first son was born there was no one to reach out to....there was no physical person who understood what a parents fear was and how to handle this diagnoses. Oh there were doctors to explain the condition.....but no one to say "Hey, I walked in your shoes....it is tough....but you CAN do it!" So this blog is to reach out and say I understand.....I know how you feel.....I have lived through 23 years of this process...my son was one of the first boys to have had a mismatched bone marrow transplant. But I am here to tell my story, explain all the confusing information and to educate others about SCIDS. |
| Interests | reading, scrap booking, art, |
| Favorite movies | Blind Side, Taken, Star Trek, Mall Cop, My Big Fat Greek Wedding.... |
| Favorite music | Soft pop, country....oldies, Lone Star.. |
| Favorite books | Stephen king, Danelle Stelle, Nora Roberts |