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"Best Summer Ever: An Update on Chandler’s Progress"

16 Comments -

1 – 16 of 16
Blogger Casdok said...

Well done Chandler!!!

11:57 AM

Blogger Jacqueline said...

That is wonderful. He's beautiful, really, really just easy on the eyes.

Don't forget to read your this post on the days you get discouraged to remind you how God is blessing you.

Could you potty train Lauren for me? Ha!

9:06 PM

Anonymous Anonymous said...

Congratulations!! Good job mom :)

1:35 PM

Blogger Soni said...

Hi,
My 6 year old son was diagnosed with Autism at the age of 3. One of the struggles we've had was clarifying his functioning level with educators.
I found and used this tool on the site http://www.autismsupportsforyou.com and found it very user-friendly and helpful. Parents are asked to complete a survey that asks questions from a parent, caregiver or educator about a child’s particular learning style and needs. Based on that feedback, it generates a report of individual strategies that can be applied immediately. This was created by a mom with a child on the Autism Spectrum and group of educational consultants, it's really cool. I Hope parents find this as beneficial as we did.

Best regards,
Soni

3:29 PM

Blogger Dadof6Autistickids said...

Great to have you back! What additional info do you have on chelation, especially costs. Or links or other good info. Thanks!

6:00 PM

Blogger Ginger Taylor said...

Thanks Guys...

I should get together a chelation resource list.

But for now... Read, Changing the Course of Autism (see side link), see a Dan Doc, get a urine toxic metals test.

Let me look for a good primer on chelation.

8:14 PM

Blogger Clay said...

That is really great news about Chandler. I hope he continues to amaze you.

10:03 AM

Blogger Dan @ Necessary Roughness said...

Any idea why his lead levels are increasing?

Congratulations on potty training.

10:04 AM

Blogger Ginger Taylor said...

most reason for increasing lead is that the lead bound up in his tissues is pouring out.

Docs have found that when they start chelating autistic kids, they end up dumping up to 300 or 400 times the amount of metal that they initially tested for.

But we also had the state come in last week and do an evaluation for lead hazards in our house. He found some and we will be cleaning that up asap.

Since that hazard has always been there, it should be one of the culprits for his toxicity, but would not account for the increase.

10:35 AM

Blogger Dan @ Necessary Roughness said...

Docs have found that when they start chelating autistic kids, they end up dumping up to 300 or 400 times the amount of metal that they initially tested for.

Ginger, thanks for the quick answer. Do these docs fault the initial tests for not detecting the amount, or is something keeping the initial lead from coming out? If the latter, any theories on that? Thanks.

10:57 AM

Blogger Ginger Taylor said...

The belief is that these kids have an efflux disorder. The inability to excrete heavy metals. They do not make any or enough glutathione, the amino acid that the body generates to bind to metals so that the liver can process them out of the body. Instead of detoxing the way you or I do, the metals become bound in the tissue, most disastrously in the brain, and just stay there doing damage.

When the chelating agents are administered (Glutathione, DMSA, EDTA, DMPS) the metal excretion is measured, they are really only measuring the amount of metals that are released into the blood stream or the urine. There is no way to accurately find out how much mercury is in the brain, for example, with out terminating the subject and doing an autopsy. My analogy is that the metals are like clowns coming out of a clown car, you don't know how many were in there until they stop coming out.

So you test and see if it is in there, then take periodic measurements to see if it is still showing up. When it stops showing up in tests, then you know you have gotten it out.

11:16 AM

Blogger Laura said...

That's awesome, Ginger! Glad Chandler is doing so well! I had to LOL about the clown car thing, though! We've done some oral chelation with Hutton, but I really want to do the big stuff now, but have to get his current doctor, a naturopath to find us a doctor willing to do the IV. We've seen such an amazing increase in language with the B12 shots we started this summer. It's really encouraging to hear and see such wonderful changes!

1:41 PM

Blogger Patrick Sullivan Jr. said...

That's so wonderful to hear Ginger. Hope you, Chandler, and Scott (it is Scott right?) are all doing well up in Maine!! :)

9:01 PM

Blogger B said...

This is great!
We are about to begin DMSA chelation and your post is encouraging.
We did DMPS earlier this year with a ton of gains. I am anxious but more confident about it this time around.

Congrats on your little man!and he is so handsome too!

B

2:23 PM

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11:43 AM

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